Takes place Sunday, June 12th at 43 Hoops
Hopkins, Minnesota (April 4, 2022) –
The Minnesota Chapter
of the Huntington’s Disease Society of America (HDSA) will host the Twin Cities Hoopathon on Sunday, June 12th at 1:00 PM at 43 Hoops. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
“While HD might be rare, there are other families and friends here to support you within your very own community,” said Camille Colletti, HDSA’s Upper Great lakes Regional Development Officer. “With laughter, smiles, and a day of fun; our events bring us all together to embrace our challenges, because Family is Everything.”
This is one of the flagship events organized by HDSA’s volunteer-led Chapters and Affiliates nationwide to recognize those who have made an impact in their community while inspiring others to join the fight against Huntington's disease.
For more information about the event, please contact Emily Viau (email@example.com
). Online registration and a donation can be found at MINNESOTA.HDSA.ORG/HOOPATHON
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA.
FOR IMMEDIATE RELEASE
(212) 242-1968 ext. 204